April 26, 2011/2:35pm- In EMG now. Prayers…..
April 26, 2011/7:55pm- The EMG results did not bring good news. Our sweet baby boy has been diagnosed with Type 1 Spinal Muscular Atrophy (SMA). Although our hearts are breaking, we will remain faithful. We feel certain our little guy has a purpose and can’t wait to see the joy he brings to our lives! Please continue to pray for our strength and Miller’s health.
April 25, 2011/8:28am- They have decided to do the muscle biopsy today instead of tomorrow. He will go back at 2:00pm. Thank you so much for your prayers!
April 25, 2011/12:44pm- They came early to get Miller. He is having biopsy done as we speak. Pray, pray, pray:)…..
April 25, 2011/3:24pm- Muscle biopsy went good! We are back in the room! The neurosurgeon said the muscle looked good to the naked eye:)! Now they will send a specimen to their lab and to UAMS for further testing. Now the waiting game begins. Thank you SO much for your prayers.
(We took these pictures right before he went back for the biopsy. They are some of my favorites!)
..."If you know someone who has lost a child, or lost anybody who's important to them, and you're afraid to mention them because you think you might make them sad by reminding them that they died, they didn't forget they died. You're not reminding them. What you're reminding them of is that you remember that they lived, and that's a great, great gift." -Elizabeth Edwards
GIRL!!!!!!
We are SO excited to announce that Cole and Miller are going to have a baby SISTER:)!!! A friend of ours did a “sneak peek” ultrasound on us and confirmed that it is indeed a baby girl! Jyl told us at 12 weeks (when we were in LR for a doctors appointment) that she thought it was a girl, but it was just too early to tell for sure. She said she was 51% sure it was a girl. Dr. Birch told us at 15 weeks that she was 75% sure it was a girl. But to hear a definite “you can paint the nursery, It’s a GIRL!” was just surreal. We obviously don’t care what we are having, we just want a healthy baby, so with that being said, if something starts to “grow” in the next couple of months, we would certainly be happy with a boy, too. In the meantime, I’m going to let the fun and games of shopping begin;)! Thank you all for your continued prayers. We are sincerely grateful for each and every one!
(sorry for the quality, this is a “picture of a picture”)…..
Yesterday marked the 1 year anniversary of the day we took Miller to the doctor due to our concern for his lack of muscle tone. Part of me feels like it was just yesterday, and the other part feels like it’s been years…..
*These were my Facebook status updates from 1 year ago today:
April 21, 2011/10:30am- Our world was turned upside down yesterday. Our sweet baby Miller has been diagnosed with a muscular disease. We don’t know exactly which one, but most likely a form of muscular dystrophy. We have been thrown a curve ball, but are ready to play the game! We are on the road to Children’s Hospital now and hope to have more answers soon. We would appreciate your prayers during this trying time in our lives.
April 21, 2011/6:36pm- Relaxing in between tests. Waiting on MRI results. Just got blood drawn.
This weekend is Razorback Athletics Alumni Weekend. Patrick played in the golf tournament today, then Cole and I met him at the football stadium for a fish fry. Cole had so much fun playing with his daddy’s buddies kiddos:)…..
FLASHBACK:
2008-
2009 (this is how old Miller would have been this year)-
*Our friend, Keely, posted this on Facebook:
“Miller was with us during Mason's story time!”
*My friend, Emily, posted this on Facebook:
Mer, I just noticed that Charlie Brown is with Miller!
*My friend, Shay, posted this on Facebook:
“My students are giving presentations right now. I immediately thought of you and Miller when I saw this presentation. :)”
*My cousin, Laken, posted this on Facebook:
“Miller was on a phone case! Thought of y'all when I saw it! (:”
*Our friend, Christy, posted this on Facebook:
“The Easter bunny is With Miller!”
*Our friend, Sarah, posted this on Facebook:
“I'm with miller!! Target is too ;)”
*My friend, Danielle, posted this on Facebook:
“I'm with Miller (at Las Fajitas)”
*My friend, Chrisy, posted this on Facebook:
“I'm with Miller!”
*My friend, Angie, posted this on Facebook:
“I'm with Miller!”
*Our friend, Anna, posted this on Facebook:
“Hey! Thought of Miller! This is in Southern Living this month! Love you guys!”
*Our friend, Kim, posted this on Facebook:
“Our new Cabela's store is With Miller today on his birthday;)”
*My friend, Emily, sent me this text:
“Miller is everywhere!! This is a “clean cover” to cover shopping carts, swings, high chairs, etc. It’s at Dilly Dally’s.”
*Our friend, Carrie, sent us this picture:
*My friend, Jayna, sent me this text:
“Walking back from Gulley Park…this was on the path…a little messed up on the end but almost 5 peaks! Made me smile
”
*Two out of the three times that Patrick has been to Genghi’s Grill, they have given him #87
*Our friend, Katie, sent me this text on Miller’s Birthday:
“Have been thinking about your family all day! And was sitting down for some chips and salsa and in the reflection, hellooo Miller!”
*Our friend, Lindsey, posted this on Facebook:
“Saw this ad while walking around the city yesterday and thought to myself, "Well obviously Europe is with Miller, too!!!" :))”
*My mom sent me this picture from On the Border:
*This is so special. My friend Kate’s mom sent her this not and bracelet:
*My friend, Jessica, was in Target shopping for birthday cards when she came across this card mixed in the middle…..
*Our friend, Traci, sent us this text:
“My co worker typed in “welcome home baby signs” on Pinterest and three pictures came up…this was the first one…Miller is everywhere!!”
