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Monday, November 11, 2013

Donation to Families of SMA

We were SO excited to make another $87,000 donation to Families of SMA (FSMA). This is $1,000 for every day sweet Miller was here with us! Our donation is going to go towards 2 different areas this year: A portion will go to continued supp...ort of Dr. Brian Kaspar’s Gene Therapy Program that FSMA is funding. Human clinical trials for gene therapy for SMA were approved by the FDA in September of this year! This is HUGE news in the SMA community! Miller's supporters have helped make this happen and should be SO proud! This is one step closer to a CURE! The other portion will provide scholarships to medical professionals and SMA families living in Arkansas to attend the Annual SMA Conference in Washington D.C. in June of 2014. Families of SMA has been hosting this conference for 25 years. This is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients. There is no other program like it for those affected by SMA. The interaction between the researchers and families is extremely special! The annual conference also provides children an opportunity to make new friends and have a great time! This year they are expecting over 1,300 attendees! We are so excited that with YOUR support The Miller McNeil Woodruff Foundation is able to help medical professionals and SMA families from Arkansas attend this amazing conference!

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1 comment:

Christy said...

Wow, that's awesome!!

 

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